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Health Expectations

Wiley

Preprints posted in the last 30 days, ranked by how well they match Health Expectations's content profile, based on 14 papers previously published here. The average preprint has a 0.02% match score for this journal, so anything above that is already an above-average fit.

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System pressures may threaten patient perceptions and experiences of empathy in primary care consultations: A nested qualitative interview study

Dewar-Haggart, R.; Teasdale, E.; Pollet, S.; Leydon, G. M.; Everitt, H. A.; Morrison, L.; Atherton, H.; Howick, J.; Davis, I.; Falohun, S.; Bostock, J.; Vennik, J.; Cross, N.; Little, P.; Mallen, C. D.; Ridd, M. J.; Herbert, A.; Robinson, M. E.; Nuttall, J.; Becque, T.; Garfield, K.; Stuart, B.; Islam, N.; Lee, P. H.; Bishop, F.

2026-08-26 primary care research 10.64898/2026.08.24.26361185 medRxiv
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Background Effective communication during consultations is facilitated by clinical empathy and realistic optimism, and can enhance patient satisfaction with care, alleviate symptoms, and improve quality of life. However, primary care systems are under significant strain and changing rapidly, which may affect practitioners' ability to communicate empathically and convey realistic optimism, with implications for the patient-practitioner relationship and patient outcomes. Understanding patients' perspectives of healthcare communication in the current clinical context is therefore important. We aimed to explore patients' experiences and perceptions of communication in UK primary care consultations, focussing on the communication of clinical empathy and realistic optimism. Methods A qualitative interview study was conducted as part of a multi-centre cluster-randomised trial of EMPathicO, a brief e-learning package for Primary Care Practitioners (PCPs) on communicating clinical empathy and realistic optimism. Participants were not aware whether their general practice had access to EMPathicO or not. Interviews were conducted within 7-14 days of participants' consultations, explored their views and experiences of clinical empathy and realistic optimism, and were transcribed verbatim. Interviews were analysed using Ritchie and Spencer's Framework Method. Results We conducted semi-structured audio-recorded qualitative telephone interviews with 71 participants from 29 primary care practices taking part in the EMPathicO trial. Following comprehensive mapping of data to the framework derived following initial analysis, four themes were agreed. Overall, most participants described positive empathic consultations with their PCPs, however, participants' experiences were shaped by wider systemic and contextual factors. They described a stretched and inefficient primary care system impacting empathy and optimism; the impact of PCP 'preparedness' as a marker for empathy; how consultation modality (i.e. in-person or telephone) shaped perceptions of empathy, and how PCPs sharing next steps in participants' treatment and management could foster realistic optimism. Conclusions While clinical empathy and realistic optimism may be experienced by patients during consultations with practitioners, the wider contextual challenges of accessing and navigating primary care systems can threaten overall perceptions of feeling cared for. Future primary care policy and workforce training must consider these system pressures to preserve effective communication in consultations and positive patient-practitioner encounters.

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Women's experiences of emergency post-abortion care at Kawempe National Referral Hospital, Uganda - A qualitative phenomenological study

Saad Sessimba, K.; Godfrey James, A.; Andrew, B.; Pious, I.; Balikudembe, K.; Annette, K.; Kayiga, H.

2026-08-27 obstetrics and gynecology 10.64898/2026.08.25.26360981 medRxiv
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Background: Post-abortion care (PAC) encompasses emergency treatment, counselling, contraceptive services, and referral linkages. Emergency post-abortion care (EPAC), the life-saving component of PAC, addresses acute abortion-related complications, including haemorrhage, sepsis, retained products of conception, and severe pain. In Uganda, where abortion is legally restricted and socially stigmatised, womens care experiences are shaped by clinical urgency, fear, moral vulnerability, provider interactions, and structural health system constraints. Despite EPACs centrality to maternal survival, qualitative evidence on how women interpret and evaluate their care experiences in referral hospital settings in Uganda remains limited. This study explored womens experiences of EPAC at Kawempe National Referral Hospital (KNRH) and identified the factors that shaped those experiences. Methods: A qualitative phenomenological design was employed. Sixteen in-depth interview transcripts from women who received EPAC at KNRH in March-April 2026 were analysed using inductive thematic analysis. The Socio-Ecological Model (SEM) was applied as an interpretive framework. Results: Six themes were identified: (1) survival and physical relief as the immediate measure of good care; (2) pain, fear, and emotional distress during treatment; (3) reassurance and support as buffers against vulnerability; (4) dignity under pressure: communication and privacy in EPAC; (5) structural barriers across the pathway of care; and (6) experiences beyond discharge: incomplete recovery and uncertainty. Care was frequently evaluated through the lens of survival, yet these accounts co-existed with intense procedural pain, compromised privacy, delays, financial burden, and inadequate post-discharge support. EPAC at KNRH was experienced as a complex encounter shaped by bodily vulnerability, interpersonal dynamics, and system-level constraints. Conclusions: Strengthening EPAC requires patient-centred approaches that integrate clinical effectiveness with respectful communication, pain management, improved triage, and structured post-discharge support.

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Project ECHO for patients with chronic intestinal failure: Empowering people living with rare disease using a virtual telelearning model

Iyer, K.; Winkler, M.; Fisher, E.; Kumpf, V.; Nair, M.; Kakani, S.; Poindexter, K.; Jablonski, A.; Hoopes, E.; Ballog, P.; Nisenholtz, M.; Friebel, R.; Yiannoutsos, C.; Lai, J.; Tappenden, K.

2026-08-28 health systems and quality improvement 10.64898/2026.08.25.26361379 medRxiv
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Background: Chronic intestinal failure is a devastating rare disease in which patients require complex and life-saving parenteral nutrition or intravenous fluids delivered through a central venous catheter. There is a shortage of clinical expertise to manage chronic intestinal failure and patients in the United States lack access to the limited number of expert care centers. We developed a patient intestinal failure (PIF) ECHO intervention with patient advocates who have lived experience with the goal of connecting patients and family caregivers virtually to multidisciplinary intestinal failure experts for best practice learning. Objective: We pilot-tested the acceptability and feasibility of a direct-to-patient telelearning program based on the well-established ECHO Model focused on best practices in chronic intestinal failure care. Setting and Participants: 19 adults with chronic intestinal failure attended the pilot PIF-ECHO program for 12 consecutive weeks via Zoom between April and July 2026. All participants completed the post intervention questionnaire and 16 individuals participated in 3 focus groups. Design: A mixed methods evaluation was conducted. Questionnaires were assessed according to seven domains of the Theoretical Framework of Acceptability and qualitative data from the virtual focus groups were coded and analyzed using iterative thematic analysis. A data-derived PIF-ECHO logic model was developed to illustrate pathways between the program content and anticipated outcomes. Results: There was strong or very strong agreement that sessions were accessible, enjoyable, worth the time spent, and improved understanding of intestinal failure and its management. Information learned increased confidence for self-advocacy in navigating healthcare needs, disease and therapy self-management, and improved well-being. Interaction with facilitators, expert presenters, and peers was positive, judgement free, validating, and respectful. Participants felt empowered and reported lower levels of emotional strain due to the supportive resources and knowledge gained. Conclusions: A patient-facing tele-learning program in chronic intestinal failure is feasible, accessible, and acceptable to patients and appears to result in important short-term and medium-term benefits. The program was perceived as valuable and notably different from patient and peer-led support groups. The model could be applied more widely to other rare diseases. Lived Experience and Patient Contributions: Four patient advocates with lived experience in chronic intestinal failure were involved throughout the study including pre-study interviews and focus groups to inform PIF-ECHO design and content, recruitment, as presenters on topics of self-advocacy and role of patient support groups, and in the analysis and refinement of the program logic model. Their input shaped the relevance and acceptability of the PIF-ECHO pilot program. All four patient advocates fulfil uniform requirements for authorship and are co-authors on this paper. This work documents a meaningful partnership in the creation of a patient-facing virtual tele-learning adaptation of the ECHO model and establishes a valuable collaboration for future study of PIF-ECHO on a larger scale.

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Social functioning in Primary Ciliary Dyskinesia (PCD): a study of lived experience, relationships and support of patients and caregivers

Fernandez-Rodriguez, A.; Karavasiloglou, N.; Gkatzou, V.; Dexter, K.; Manion, M.; Silberschmidt, H.; Zambrano, S. C.; Pagnini, F.; Kuehni, C. E.; Goutaki, M.

2026-08-27 epidemiology 10.64898/2026.08.24.26360722 medRxiv
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Primary ciliary dyskinesia (PCD) is a rare, genetic, multiorgan disease requiring lifelong management. Although PCD affects everyday life, little is known about how people with PCD experience social functioning (SF). We conducted a study within the international participatory Living with PCD study to comprehensively explore SF. First, we conducted a focus group and two semi-structured interviews with adults and parents of people with PCD. We analysed qualitative data thematically and used the findings to develop a multilingual online questionnaire on SF. The questionnaire was completed by 277 participants: 225 adults and adolescents with PCD (81%) and 52 parents of children with PCD (19%). Participants reported active social lives and strong close relationships. PCD had a positive impact on family relationships for 39% of adult/adolescent participants and 41% of parents reporting for children. Among adult/adolescent participants, 49% reported positive or no impact on romantic/intimate relationships, while 17% had avoided or ended a relationship because of PCD. PCD affected the ability to meet responsibilities for 54% of participants, free time for 58%, and planning effort for 53%. Participants were more comfortable discussing PCD with family, friends, and partners than in work or educational settings, where only 29% reported receiving support. Financial support, flexible work, or educational policies and better-trained healthcare professionals were the most frequently identified unmet needs. This study suggests that maintaining SF with PCD requires substantial individual and relational work. Improving SF for people with PCD requires systemic responses in healthcare, education, and employment, alongside support from close networks.

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Design and evaluation of a youth co-designed trauma-informed public health resource for use in public sector settings in England

Hugh-Jones, S.; Allder, L.; Baker, E.; Butcher, I.; Sansoy, H.; Shaughnessy, N.; Bhui, K.

2026-08-10 psychiatry and clinical psychology 10.64898/2026.08.05.26359401 medRxiv
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Background: Trauma-informed approaches (TIAs) are increasingly implemented across public-sector settings to improve support for young people affected by adverse childhood experiences (ACEs). However, practitioners often report difficulties translating broad trauma-informed principles into everyday practice, and young people are rarely involved in developing resources intended to support implementation. Aim: To co-design, implement and undertake a preliminary evaluation of a youth-led trauma-informed resource for professionals working with young people in public-sector settings in England. Methods: The study formed part of the UKRI-funded Attune programme and employed Accelerated Experience-Based Co-Design (AEBCD). Eighteen adolescents with lived experience of ACEs and 16 professionals from nine public-sector settings participated in three regional co-design workshops. Findings from a prior arts-based lived experience study informed the workshops. Participants collaboratively developed Validating Voices, a low-cost resource designed to increase validating interactions between professionals and young people. The resource was subsequently introduced into nine organisations and evaluated using staff surveys and semi-structured interviews. Results: Co-design participants identified professional invalidation of young peoples experiences, identities, needs and emotions as an under-recognised contributor to mental health. The resulting resource combined discussion cards, creative activities, role-play and organisational reflection exercises to promote validating practices. Five organisations implemented the resource and reported it to be feasible. Flexible local adaptation was common, while more participatory role-play elements proved harder to implement consistently. Staff observed increased opportunities for disclosure, reflection, peer connection and professional curiosity about young peoples experiences. Staff reported listening differently to young people and, in some settings, implementing changes in response to young people's recommendations. Conclusions: Youth-led co-design identified validation as a practical and meaningful mechanism for operationalising trauma-informed principles in everyday professional practice. With refinements, Validating Voices shows promise as a resource to support more relational, collaborative and trauma-informed responses to young people in public sector settings.

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Translating motivations, barriers, support and information into health behaviour change: community members' response to Australia's National Preventive Health Strategy

Steel, A.; Foley, H.; Adams, J.

2026-08-14 public and global health 10.64898/2026.08.12.26358631 medRxiv
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Preventive health is a crucial health systems component for managing disease burden and achieving health promotion policy goals. However, effective prevention relies on the modification of relevant risks, often requiring systemic health behaviour change. Australia's National Preventive Health Strategy (NPHS) prioritises seven focus areas: tobacco and nicotine, healthy diet, physical activity, cancer screening, immunisation, alcohol and other drugs, and mental health. The readiness of community members in Australia to address health behaviours relating to these areas has not been fully examined. In response, six focus groups were conducted with 27 adults from the Australian general population to explore their perspectives and experiences of preventive health information and behaviours relating to the seven NPHS focus areas. Themes and sub-themes were identified using an applied descriptive framework. Participants described motivations, barriers and experiences surrounding preventive health through the themes of 'Making informed health choices', 'Facilitating behaviour change and the role of support systems' and 'Spreading the preventive health word'. Sub-themes detailed processes of prioritisation, risk-benefit assessment, critical appraisal, sociocultural influence and support-seeking to understand and personalise preventive health information, implement behavioural change, and share information with others. The focus areas participants engaged with most strongly were healthy eating and physical activity, while cancer screening was discussed less often. These findings indicate high preventive health engagement in the Australian community, alongside challenges navigating and adapting relevant information to personal needs. These insights can support policymakers, healthcare providers and others to effectively enact the NPHS through more targeted preventive health information and care delivery.

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Beyond adherence: Experiences shaping engagement with oral anticancer medication among immigrant patients with haematological malignancies and limited dominant-language proficiency.

Michiels, S.; Meuleman, N.; Tricas-Sauras, S.

2026-08-21 hematology 10.64898/2026.08.18.26360752 medRxiv
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Background: Immigrant patients with limited dominant-language proficiency may face intersecting challenges when navigating cancer care and long-term oral anticancer treatment. Although studies have reported lower medication adherence among migrant and ethnic minority populations, less is known about how migration-related, linguistic, experiential and contextual factors shape treatment engagement from patients own perspectives. This study explored how immigrant patients experience illness, navigate treatment and engage with oral anticancer medication within the broader context of cancer care. Methods: Thirteen immigrant patients with limited dominant-language proficiency receiving oral anticancer medication for haematological malignancies were recruited from the haematology outpatient clinic of a Belgian university hospital. Semi-structured interviews were conducted in participants native languages using an adapted version of the McGill Illness Narrative Interview, with professional interpreters or intercultural mediators. Interviews were analysed using inductive reflexive thematic analysis within an interpretivist framework. Results: Analysis of patients illness narratives generated five experiential dimensions: 1) bodily, biographical and identity rupture; 2) temporal disruption and uncertainty; 3) linguistic vulnerability shaping the illness experience; 4) meaning-making and explanatory frameworks; and 5) resources sustaining treatment engagement. Linguistic vulnerability shaped access to biomedical knowledge, participation in healthcare encounters and patient autonomy, while patients mobilised personal, relational, existential, linguistic and institutional resources to sustain treatment continuity. Treatment engagement emerged as a dynamic and relational process embedded within broader migration-related, linguistic and healthcare contexts. Rather than representing fixed determinants or sequential stages, the five dimensions formed an evolving configuration whose relative salience varied throughout the illness trajectory. Conclusion: This study proposes a multidimensional interpretive model of engagement with oral anticancer medication among immigrant patients with limited dominant-language proficiency. Rather than conceptualising adherence as an isolated individual behaviour, the findings show how migration-related contexts shape the conditions under which treatment engagement becomes possible, difficult or fragile. By foregrounding immigrant patients lived experiences, the study identifies experiential, linguistic, relational and structural dimensions of cancer care that are difficult to capture through behavioural adherence measures alone and offers insights for more equitable, context-sensitive and patient-centred oncology care.

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"Shifting and sharing the power" in research: Views and perspectives on research priorities from the Down syndrome, Fragile X syndrome and Williams syndrome communities

Cristescu, L.; Pellicano, E.; Van Herwegen, J.; Scerif, G.; Farran, E. K.

2026-08-23 psychiatry and clinical psychology 10.64898/2026.08.20.26360980 medRxiv
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People with intellectual disabilities and their communities are rarely involved in setting priorities for research. Our study addressed this gap through consultations with the UK communities of three genetic syndromes in which intellectual disabilities are common: Down syndrome (DS), Fragile X syndrome (FXS) and Williams syndrome (WS). The study aimed to provide an understanding of (1) the views of the DS, FXS and WS communities on current UK research; (2) their priorities for future research; and (3) participants views of engaging with UK research. We conducted focus group discussions with 39 community members including: children and adults with DS, FXS and WS; parent/carers of people with DS, FXS and WS; practitioners and researchers who work with these communities. Our study was carried out in collaboration with a Steering Group and two Advisory Groups of DS, FXS and WS community members. We identified three themes. First, participants shared their dissatisfaction with the current research landscape and wanted a more balanced landscape, with more research with direct application to the daily lives of people with DS, FXS and WS. Second, community members emphasised the importance of translating research into practice, advocating for better access to research and more meaningful participation to research of individuals with lived experience. Third, our study not only identified what should be the focus of future research on DS, FXS and WS, but also how researchers should conduct their research. Whilst including children in our sample was a strength, there were some limitations to the diversity of our sample; children with FXS were not represented and gender, ethnic and geographic diversity could have been broader. Nevertheless, we hope that our findings will change the future of research in this field so that research carried out in the name of individuals with intellectual disabilities such as DS, FXS and WS, is of direct use to these communities.

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Psychometric Validation and Structural Refinement of Displaced Medical Student Scale (DMSS): Extending Bourdieusian Theory to Quantify Transnational Educational Dislocation

Rezaei Zadeh, M.; Hamam, Y.; Sayeed, S.; AbuZarifa, M.; Zaqout, k.; AbuOlwan, O.; Massri, L.; Alhennawi, L.; Miqdad, F.; R Zughbur, M.

2026-08-10 health systems and quality improvement 10.64898/2026.08.05.26359838 medRxiv
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The forced displacement of medical students due to armed conflict presents a profound disruption to the global medical education continuum. Existing research predominantly evaluates individual psychological trauma, leaving a critical gap in measuring the structural and institutional friction displaced learners face when transitioning into host medical schools. This study details the development, structural refinement, and psychometric validation of the Displaced Medical Student Scale (DMSS), a novel 38-item instrument theoretically grounded in Pierre Bourdieus Theory of Practice. Utilising an exploratory sequential mixed-methods design adhering to COSMIN guidelines, initial qualitative items generated from a transnational cohort underwent content validation by an expert panel (Scale-Level Content Validity Index Average = 0.96) and pilot face validation (N = 29) to eliminate linguistic barriers. Subsequent psychometric testing with 156 displaced Gazan medical students confirmed a robust six-factor latent structure: Mechanisms of Conflict, Hysteresis and Dislocation, Agential Coping, The Agents Toolkit, The Institutional Field, and Transition Outcomes. Confirmatory factor analysis using diagonally weighted least squares demonstrated excellent model fit (, Comparative Fit Index = 0.925, Tucker-Lewis Index = 0.918, Root Mean Square Error of Approximation = 0.058, Standardised Root Mean Square Residual = 0.064) and exceptional internal consistency (Cronbachs , McDonalds ). Structural equation modelling proved that institutional symbolic violence negatively impacts transposed clinical capital () and that structural hysteresis mathematically mediates the path between symbolic violence and professional attrition fatigue (). Furthermore, agential coping significantly moderates identity crisis outcomes (). The DMSS provides medical faculties with an evidence-based metric to transition from deficit frameworks to targeted structural interventions that preserve displaced clinical capital.

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Experiences of frontline physiotherapists during the COVID-19 pandemic at two tertiary hospitals in Southern Malawi: A phenomenological qualitative study

Phiri, A.; Chinula, E.; Jangwa, C.; Khosa, E.; Tarimo, N.; Bickton, F. M.

2026-08-10 rehabilitation medicine and physical therapy 10.64898/2026.08.07.26359182 medRxiv
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Frontline healthcare workers (HCWs) during the COVID-19 pandemic in Malawi included physiotherapists. This study explored the experiences of those physiotherapists to help prepare workforce support plans in the future in the advent of a new disease outbreak. This phenomenological qualitative study was conducted between 2 May and 15 June 2024 at two tertiary hospitals in Southern Malawi namely, Queen Elizabeth Central Hospital (QECH) and Zomba Central Hospital (ZCH). Participants were purposely sampled and included physiotherapists who had been involved in caring for patients with COVID-19 at the two hospitals. Data was collected from 11 participants (9 from QECH and 3 from ZCH) using physical in-depth interviews. The recorded interviews were transcribed verbatim and transcripts analyzed using a deductive thematic approach. Themes were broadly categorized into positive and negative experiences. Among positive experiences, participants reported that physiotherapy interventions facilitated quick recovery of patients. In some instances where oxygen cylinders were not enough or had run out of oxygen, physiotherapy interventions were lifesaving. Additionally, the COVID-19 pandemic raised awareness of physiotherapy's role in COVID-19 management and resulted in permanent employment for several physiotherapists. Under the theme of negative experiences, participants faced challenges with team recognition, communication, staff shortages, inadequate equipment, and no local physiotherapy guidelines. The findings suggest Malawis healthcare system needs better pandemic preparedness and stronger interdisciplinary care.

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Perceived usability and usefulness of a clinical decision-support application among newly graduated physicians in rural areas: a mixed-methods study

De la Cruz-Torralva, K.; Diaz-Sanchez, P.; Escobar-Agreda, S.; Rojas-Mezarina, L.

2026-08-21 primary care research 10.64898/2026.08.18.26360759 medRxiv
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Mobile clinical-support applications can facilitate access to evidence-based information at the point of care, but evidence on their usability and perceived usefulness among newly graduated physicians working in health facilities with limited capacity is scarce. We assessed physicians experiences with BMJ Best Practice using a convergent mixed-methods study. All 81 eligible physicians assigned to rural facilities were invited; 32 enrolled and received application access and training. After three months, participants completed an online survey, and 23 reported using the application. Ten physicians reporting the highest consultation frequency were purposively selected for semi-structured interviews. Survey findings showed a predominantly favorable perception of usability: for most items, 70%-90% of participants agreed or strongly agreed with the statements assessed. Among users, 14 of 23 (60.9%) used the mobile application and 9 (39.1%) used the web version. Interviews indicated that participants valued rapid searches, organized and evidence-based information, and support for diagnostic reasoning, referral decisions, learning, and clinical confidence. Barriers included limited connectivity, difficulties searching in Spanish, automatic updates, challenges locating or using some calculators, and treatment information that was sometimes insufficiently specific. Most importantly, participants could not always implement recommendations because suggested medicines, diagnostic tests, or other resources were unavailable in their facilities. Mobile clinical-support applications may complement decision-making and learning among early-career physicians in rural primary care. However, their practical value depends not only on usability and evidence quality, but also on adaptation to users language, workflow, connectivity, and local service capacity.

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AVATAR therapy for distressing auditory hallucinations: mediators of change in AVATAR1, a single blind randomised control trial with supportive counselling as active control

Fornells-Ambrojo, M.; Ster, A. C.; Garety, P.; Craig, T. K.; Huckvale, M.; Emsley, R.; Edwards, C.; Hardy, A.; Ward, T.; Rus Calafell, M.

2026-08-12 psychiatry and clinical psychology 10.64898/2026.08.11.26360172 medRxiv
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AVATAR therapy is an effective relational therapy for persistent distressing auditory verbal hallucinations (voices). A digital representation of the embodied persecutory voice (avatar) is created and used in a series of dialogues in which the voice hearer is supported to be more assertive and the avatar concedes power. In the first mediation analysis of AVATAR therapy examining the role of power-related constructs, we investigate whether treatment effects on total severity, frequency, and distress of voices are mediated by changes in beliefs about voices and the self, voice relationship appraisals and anxiety. Mediation effects were evaluated in relation to decomposing treatment offer and treatment receipt effects using both Intention to treat (ITT) and Complier Average Causal Effect (CACE) analyses. One hundred and fifty participants from AVATAR1, a randomised control trial (RCT) comparing AVATAR therapy to Supportive Counselling took part in this study, with their baseline and end of treatment (12 weeks) data used. As hypothesised, across both ITT and CACE analyses, reductions in perceived voice omnipotence and increased assertiveness in relation to voices emerged as consistent mediators of AVATAR therapy on reductions in overall severity, frequency and distress of auditory hallucinations compared to SC, whereas voice malevolence, perceived power differential, self-esteem and anxiety did not. Exploratory analysis also indicated that increases in acceptance and autonomy in relation to voices mediated the impact of AVATAR therapy on overall voice severity and distress. This mediation analysis refines our understanding of AVATAR therapy and highlights agency, voice omnipotence and acceptance as intervention targets.

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Charting Champions: Online Coaching to Reduce Physician Administrative Burden and Improve Well-Being

Smith, S. J.; Lemoine, D.

2026-08-10 health systems and quality improvement 10.64898/2026.08.05.26359826 medRxiv
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Objective: To assess the efficacy of an executive peer coaching program, Charting Champions Program (CCP), in helping physicians manage their administrative workload, thereby improving time management, workflow and well-being. Findings: In this longitudinal survey study, physicians self-reported significant improvements in completing charting and administrative paperwork during their clinical day. Physicians reported significant improvements in mental, cognitive and emotional states after the program. Meaning: The Charting Champions Program is an effective intervention that supports physicians in problem-solving the administrative burden of their clinical day, improving workflow efficiency, completing administrative requirements during clinical hours, and enhancing work-life balance and personal satisfaction. Background: Physicians are subject to high levels of mental, physical, and emotional stress, partly due to increasing administrative burdens. Online coaching is a proven intervention to help physicians improve workflow efficiency, reduce administrative burden and improve job satisfaction. Design: This voluntary longitudinal survey took place between 2020 and 2023. Physicians were asked to complete a survey at program entry and again 30-90 days after program completion. The survey consisted of 14 Likert scale questions, and a final sample of 280 physicians completed both surveys. Intervention: CCP contains modules that teach workflow improvements for clinical days, including timely charting, administrative task workflow, managing patient consultations and reducing interruptions. Interventions include self-paced modules, live coaching, recordings and an online peer community. Results: Post-CCP physicians reported a significant decrease in hours spent charting (P<0.0001) and completing clinical paperwork outside of clinical hours (P<0.006). Physicians also reported a decrease in work-related dread (P<0.001), feelings of burnout (P<0.001), and thoughts of quitting due to administrative burdens (P<0.001). Physicians felt more focused at work (P<0.001), felt more in control of the clinical day (P<0.001), and rated their mental energy at work higher (P<0.001). The program did not affect the number of patients seen in a full clinical day (P > 0.918). Conclusion and Relevance: The CCP reduces the time physicians spend on tasks outside of clinical hours, increasing free time without decreasing the number of patients seen per day.

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Seeking Help from Chatbots for Suicide Thoughts: Associations with Other Help Seeking Sources and Mental Health Symptoms

Heo, R.; McBride, L.; Parrish, E.; Fulginiti, A.; Taylor, C.; Depp, C.

2026-08-14 psychiatry and clinical psychology 10.64898/2026.08.12.26360318 medRxiv
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Background: Generative AI is evolving at a rapid pace, and many individuals are utilizing chatbots for mental health support. The safety of chatbots amid suicide disclosures is a major public health focus. However, the rate and correlates of intentions to seek help from chatbots for suicide thoughts is unknown. Objective: We sought to understand intentions to seek help from chatbots for suicide thoughts, compared to informal, formal, and anonymous online sources. Methods: Participants with clinically significant depression or anxiety (N=58) completed the General Help Seeking Questionnaire regarding help-seeking intentions for suicide thoughts and general emotional problems. Two questions were added to assess intentions to seek help from chatbots and anonymous online sources. Wilcoxon tests were used to compare intentions to use chatbots with intentions to use anonymous online sources and with groupings of informal (e.g., friends, family) and formal (e.g., therapist, general practitioner) sources. Kendall's correlations were used to examine correlations among groupings and individual informal and formal sources, and regression models further examined individual source associations adjusting for general help-seeking intentions. Exploratory analyses assessed whether demographic characteristics, mental health symptoms, and suicide risk were associated with help-seeking intentions for chatbots. Results: Participants endorsed lower help-seeking intentions for suicide thoughts from chatbots than from informal and formal sources. Intention to use chatbots for suicide thoughts was not correlated with informal and formal sources but was correlated with anonymous online sources. At the individual source level, chatbot intentions were positively associated with intimate partners but negatively associated with outreach to friends after adjustment for general help seeking tendency. Anxiety symptom severity was positively correlated with chatbot use intentions, but not with other sources of support. Conclusions: While preliminary, intentions to use chatbots for suicide thoughts appear mostly disconnected from intentions to seek help from other informal and formal supports. Future studies should evaluate the dynamics of help seeking for suicide thoughts via chatbots amidst and, perhaps in place of, other sources of support.

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Breastfeeding intentions and breastfeeding reality among first-time mothers living with obesity: A qualitative thematic analysis

Aubry, E. M.; Keller, D.

2026-08-18 nursing 10.64898/2026.08.17.26360590 medRxiv
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Background: Maternal obesity is associated with lower breastfeeding initiation, shorter breastfeeding duration and lower rates of exclusive breastfeeding. Although breastfeeding intention predicts initiation, little is known about how first-time mothers living with obesity experience the transition from antenatal intention to postpartum reality. Aim: This qualitative study explored breastfeeding expectations, intentions, attitudes and early breastfeeding challenges among first-time mothers living with obesity in Switzerland. Methods: Seven semi-structured interviews were conducted with first-time mothers living with obesity in German-speaking Switzerland. Interviews were audio-recorded, transcribed verbatim and analysed using reflexive thematic analysis according to Braun and Clarke. Results: All participants intended to breastfeed and described breastfeeding as part of motherhood. However, most experienced a postpartum reality that differed from their expectations. Three themes were developed: antenatal engagement with and expectations of breastfeeding, postpartum breastfeeding reality, and everyday breastfeeding life. Women received little antenatal breastfeeding counselling and faced challenges related to medicalised birth, delayed lactogenesis II, breast anatomy, pain, insufficient milk supply, pumping and inconsistent professional support. Several women described feelings of failure when breastfeeding did not work as hoped. Conclusion: First-time mothers living with obesity may have strong breastfeeding intentions but still experience major challenges after birth. Breastfeeding support should start during pregnancy and be realistic, respectful and weight-inclusive.

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The impact of quality of primary care on secondary healthcare utilisation for patients with multiple long-term conditions

Gao, Q.; Hayhoe, B.; Cicek, M.; Greenfield, G.; Otis, M.; Misirli, G.; Luisa Neves, A.; Majeed, A.; Aylin, P.; Bottle, A.

2026-08-14 health systems and quality improvement 10.64898/2026.08.13.26358683 medRxiv
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Objectives To assess the concurrent and lagged associations between quality of primary care and planned and unplanned secondary care use for patients with multimorbidity, examining the modifying role of frailty. Design A retrospective cohort study Setting This population-level analysis included 468,172 patients with multimorbidity in England from the Discover research platform (April 2022-March 2024). Participants Patients with multimorbidity Main outcome measures We used principal component analysis to combine a set of quality indicators (QIs) and assessed the impacts of QIs on both planned and unplanned care. Results Generally, patients with higher QI attainment also had higher likelihood of planned (outpatient visits) and unplanned care (emergency admissions and ED visits) utilisation. There was a lower lagged odds of elective hospital admissions in the following 12 months among those with higher attainment of multimorbidity-specific QIs (OR=0.94, 95%CI 0.93-0.95). In the complex multimorbidity cohort ([&ge;]3 conditions), multimorbidity-specific QIs were longitudinally associated with lower odds of elective admissions (OR=0.94, 95%CI 0.92-0.95) and outpatient visits (OR=0.96, 95%CI 0.95-0.98), while generic QIs were related to lower odds of outpatient non-attendance (OR=0.95, 95%CI 0.91-0.99). In non-frail patients with multimorbidity, multimorbidity-specific QIs were longitudinally associated with reduced odds of outpatient visits (OR=0.98, 95%CI 0.97-0.99), elective admissions (OR=0.92, 95%CI 0.90-0.94) and prolonged elective hospital stay (IRR=0.94, 95%CI 0.89-0.99). Conclusions Attainment of generic and multimorbidity QIs was generally associated with slightly increased planned and unplanned care. However, patients for whom we identified higher attainment of multimorbidity-specific QIs had lower odds of elective admissions and outpatient visits, especially for those with complex multimorbidity. Our research suggests that the quality of primary care may influence patients' use of secondary care, with the potential to improve care for people with multimorbidity and warrant further investigation into management strategies.

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"They feel like they have found a friend, and they are able to open-up and talk more": A qualitative study on the role of Expert Clients and Health Promotion Officers in providing ART adherence support at Lighthouse Trust Clinics in Malawi

Sande, O.; Kiruthu-Kamamia, C.; Thawani, A.; Huwa, J.; OBryan, G.; Chiwaya, G. D.; Tembo, P.; Chipolombwe, V.; Tweya, H.; Orii, L.; Feldacker, C.

2026-08-07 public and global health 10.64898/2026.08.05.26359835 medRxiv
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Introduction Expert clients (ECs) and Health Promotion Officers (HPOs) play a similar, and crucial, role in promoting client engagement and retention in antiretroviral therapy (ART) care. At Lighthouse Trusts large public clinics in Lilongwe, Malawi, ECs/HPOs are HIV-positive clients who provide ongoing counseling to client peers during the first 12 months on ART. This study aims to explore the challenges EC/HPO face to gain insights for improving retention support services. Methods Using a rapid qualitative study design, ten key informant interviews (KIIs) were conducted with ECs/HPOs at Lighthouse Trusts two urban clinics. The interviews focused on retention challenges, strategies to increase client retention, and specific recommendations to improve client engagement. Results Across the KIIs, ECs/HPOs expressed a strong sense of responsibility in supporting and motivating other people living with HIV. ECs/HPOs navigate complex client relationships by building trust and respecting cultural sensitivities. They consider themselves role models for ART adherence, disclosing their own HIV status to foster openness and encourage treatment continuity. While EC/HPOs tailor their conversations to clients needs, they remain disappointed by their inability to retain everyone in care. External factors, such as stigma and clients socioeconomic status, complicate their efforts. ECs/HPOs noted that ART clients who present as new clients for HIV testing to restart treatment instead of disclosing their treatment gap are particularly difficult to manage. To improve retention, ECs/HPOs recommended non-judgmental re-engagement strategies to encourage lost to follow-up clients to return to care, reduced documentation burdens, and promoted broadcasted ART retention messages on radio and television to support their work. Conclusions The findings highlight the role of ECs/HPOs in building trust and adapting counseling approaches to support client engagement in ART care. Efforts are needed to encourage clients to return to ART services even after treatment gaps, with both EC/HPOs and the broader clinic community fostering a supportive care environment.

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Strengthening Cardiac Rehabilitation: Key Strategies for Enhancing Accessibility and Outcomes

Tawalbeh, R.; Ellis, J. L.; Ebersole, K. T.; Litwack, K.

2026-08-25 rehabilitation medicine and physical therapy 10.64898/2026.08.20.26360821 medRxiv
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Abstract Introduction: Cardiac rehabilitation (CR) is key for secondary prevention; however, participation remains low due to persistent barriers. Identifying strategies used by high-performing programs may inform approaches to improve patient engagement and outcomes. Purpose: To identify strategies associated with improved participation and adherence in CR programs from the perspective of leaders in high-performing sites. Methods: Semi-structured interviews were conducted with 10 CR leaders from urban, suburban, and rural programs ranked in the top 10% on at least two objective performance measures (e.g., participation and adherence rates) but moderate or low on others. Data were analyzed using thematic analysis to identify strategies associated with high performance. Results: Programs with high participation and adherence rates consistently implemented proactive, patient-centered strategies to address barriers. Individualized care approaches tailored to language, culture, health literacy, and age were commonly used to improve engagement among Hispanic, Black, and older adult populations. High-performing programs addressed structural barriers such as insurance and transportation through flexible scheduling, community partnerships, and targeted outreach. Strong coordination with referring providers and effective transitions from inpatient to outpatient care were associated with higher enrollment and sustained participation. Additional strategies included staff development through ongoing education, use of digital tools for patient tracking, and implementation of virtual and hybrid CR models. Integration of psychological support further enhanced patient engagement. Conclusion: High-performing CR programs employ coordinated, patient-centered, and system-level strategies associated with improved participation and adherence. These findings provide actionable approaches to enhance accessibility and improve programs and patients outcomes in CR across diverse settings. Keywords: Cardiac rehabilitation; participation; adherence; health disparities; implementation strategies

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Nutritional screening in mental health and learning disability inpatient services: Dietitians perspectives on practices, barriers and tool suitability

Smith, S.; Leong, A.; Burke, G.; Guerin, R.

2026-08-27 nutrition 10.64898/2026.08.25.26361293 medRxiv
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Introduction People with severe mental illness (SMI) and learning disabilities (LD) experience significant health inequalities, with diet-related conditions contributing substantially to early and preventable death. Despite high levels of nutritional risk, the presence and effectiveness of nutritional screening in mental health (MH) and LD settings remains under-researched. This study aimed to investigate nutritional screening practices in UK inpatient MH and LD services from the perspectives of dietitians. Methods A cross-sectional mixed-methods study was conducted using a novel 22-question online survey. Data was collected via the British Dietetic Association Mental Health Specialist Group (April-June 2025). Quantitative data was analysed descriptively and qualitative data by reflexive thematic analysis. Findings were integrated and presented thematically. Ethical approval was granted by Teesside University (2025Mar26544). Results Forty-seven dietitians participated, most with substantial dietetic experience, from a range of MH settings. Screening practices were widely established and supported by policy and audit. However, participants reported low confidence in screening translating into meaningful patient care. Barriers to screening included appropriateness of available tools, time constraints, difficulty engaging distressed patients and poor prioritisation of physical health. Digital integration and wider infrastructure were also important. Dietitians rarely undertook screening directly, instead holding secondary or leadership roles, while screening was most often completed by nursing staff who were often perceived to place limited importance on the process. Existing tools, particularly the Malnutrition Universal Screening Tool (MUST), were viewed as insufficiently capturing the broader nutritional risks relevant to MH/LD populations, leading some services to adopt bespoke, unvalidated tools. Conclusion Concerns regarding the suitability of existing nutritional screening tools in MH/LD settings are consistent with previous literature. However, we suggest cautious use of unvalidated bespoke tools. Whilst there was no clear front runner, MH specific tools such as the St Andrews Nutrition Screening Instrument (SANSI) and the NutriMental Screener warrant further evaluation. Importantly, findings indicate that optimising tool choice alone is unlikely to improve screening effectiveness. Nutritional screening must be embedded within clear care pathways, supported by organisational leadership, digital infrastructure, and multiprofessional engagement to move beyond procedural completion and support meaningful clinical action to improve patient care.

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The implementation of a falls observational tool and its clinical effectiveness of reducing falls in a palliative care setting: a mixed methods study

Parfitt, C.; Kirk, E.; Stanley, S.; Nwosu, A. C.

2026-08-14 palliative medicine 10.64898/2026.08.13.26360364 medRxiv
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Background Falls are a major safety concern in healthcare. In palliative care, patients are particularly vulnerable due to complex symptom burdens and rapid physical decline. However, standard falls risk assessment tools, primarily designed for acute clinical environments, rely on static risk scores and lack efficacy in hospice settings. The Falls Early Warning Score (FEWS) is a observational tool developed to address the specific contributing factors and complex needs of palliative patients. Aims To explore and understand staff views regarding the implementation, utility, and benefits of the FEWS tool to identify people at risk of falling in a specialist palliative care inpatient unit. Methods A mixed-methods study was conducted at a UK hospice. Healthcare professionals with clinical experience using the FEWS chart completed an electronic questionnaire assessing their confidence, practice, and perceived barriers. Questionnaire outcomes informed subsequent face-to-face, semi-structured interviews. Qualitative data were evaluated using reflexive thematic analysis. Results Eleven staff completed the questionnaire, and five participated in interviews. Three major themes were identified: (1) Education, highlighting staff preferences for 1:1 training and the necessity of dedicated user guides; (2) Location and format of the FEWS tool, contrasting the data collection benefits of electronic formats against the bedside accessibility of paper charts; and (3) Recognised benefits of the FEWS tool, including its ability to prompt safe staffing levels, highlight variable patient presentation, and mitigate the emotional and physical impact of falls. Conclusions It is feasible and highly acceptable to integrate bespoke falls risk assessment tools into palliative care. By addressing the unique complexities of hospice patients, customised tools like FEWS can empower staff and support dynamic clinical decision-making. Further research is required to evaluate their clinical efficacy in reducing falls.